tag:blogger.com,1999:blog-8924427017159384100.post4047072462162195407..comments2017-10-25T16:00:40.579-07:00Comments on End Endo BC: Georgia Straight newspaper features End Endo BC & Erin Coward's storyEnd Endo BChttp://www.blogger.com/profile/11769842655281440469noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8924427017159384100.post-74191346484101958632011-03-17T18:28:00.786-07:002011-03-17T18:28:00.786-07:00Hey Erin,
Fantastic article, I can relate so clos...Hey Erin,<br /><br />Fantastic article, I can relate so closely with it. <br />I'd like to be a part of the support group if that's possible. I'm all the way down here in Queensland, Australia.<br /><br />Keep smiling.<br /><br />Girl in Baggy GreensGirl in Baggy Greenshttps://www.blogger.com/profile/06326544649264430216noreply@blogger.comtag:blogger.com,1999:blog-8924427017159384100.post-6364613576724695172011-03-14T19:37:21.588-07:002011-03-14T19:37:21.588-07:00Erin,
You are not alone. Thank you for being bra...Erin,<br /><br />You are not alone. Thank you for being brave and taking part in the Georgia Straight article. Dr. Williams has been one of my angels for a decade now and, as it took 3 decades to find her, I know she is a genius and a gem.<br /><br />I took part in the HEROES show during the Paralympic Games, exhibiting two paintings that express how it is for me to be disabled by Endo, you can check out my artist's statement on my website:<br />rosewarriorarts.com<br /><br />Great idea for some of us in Van to get together and share resources for pain management and ways to cope with this incurable disease.<br /><br />take care,<br />Rose L.RoseWarriorhttp://www.rosewarriorarts.comnoreply@blogger.comtag:blogger.com,1999:blog-8924427017159384100.post-37239487190600746322011-03-01T08:00:08.497-08:002011-03-01T08:00:08.497-08:00Great article! I would love to join a support gro...Great article! I would love to join a support group here in Vancouver too. I'll email my contact info.<br /><br />In case anyone who is reading this is also struggling with infertility, I would like to recommend a Canadian website: www.ivf.ca. It's a great resource and place to get emotional support. Many of us have endo and exchange information there.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8924427017159384100.post-30171221355633995502011-02-23T09:15:10.449-08:002011-02-23T09:15:10.449-08:00Hope you feel better soon, Erin.
Sending love fro...Hope you feel better soon, Erin.<br /><br />Sending love from the UK!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8924427017159384100.post-61702967383088279922011-02-22T23:31:44.541-08:002011-02-22T23:31:44.541-08:00Hi again,
Another thing I forgot to mention that ...Hi again,<br /><br />Another thing I forgot to mention that has been helpful for me has been NAET therapy, which is part energy medicine, part acupressure, and kind of an allergy treatment. Has anyone else tried this? Another thing I've found helpful myself is Mayan Abdominal Massage and herbs.. you can find a practitioner, and the herbal remedies through arvigo.com. There is also Pelvic Floor Physiotherapy that can help by treating the internal connective and supportive tissues and muscles that can become chronically tensed against the pain, which often makes it worse. I have not tried this myself but have heard from other women with endo that it helped. <br /><br />We are all different of course.. in my case, none of the hormone meds prescribed by my doctors helped at all, in fact, I got extremely sick on them and was hospitalized for 5 weeks from the damage they did to my system. Chinese medicine, acupuncture and naturopathy did not help me either, but the NAET, diet changes, abdominal massage, and Brazillian herbs have. I am not by any means out of the woods yet, but it is getting better. I hope everyone starts healing and feeling better soon!<br /><br />GiselleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8924427017159384100.post-8774741519733178402011-02-22T22:08:20.572-08:002011-02-22T22:08:20.572-08:00Thanks so much Erin, for starting this up! Yes, o...Thanks so much Erin, for starting this up! Yes, opiates have their place when things are really unbearable, but I agree, ultimately it doesn't solve anything and the side effects are in some ways just as crippling as the pain.. not to mention they are addictive, and become less effective over time. I know when I had to take them, I'd just give up and be a zombie for three days, trying to sleep through the ordeal. I've been able to improve things a lot for myself by drastically reducing the sugar, wheat and dairy in my diet. As long as the "yum" factor is still there, it's actually been pretty easy for me to switch, and I've been getting by on NSAIDs and Tylenol since, for the most part. I've also managed to find out how to make some truly decadent and delicious foods that heal instead of hurt.. such as, believe it or not, chocolate cake (made with organic cocoa, oat, barley and spelt flour and sweetened with apple sauce and stevia, and iced with coconut butter icing.. I'm not kidding: it's soooo good. Amazing, the difference a good quality stevia makes..). I'd be happy to share more about this, and recipes if anyone's interested. Also, a ton of information about alternative approaches to endo can be found at www.endo-resolved.com, which is also written by women with endo. <br /><br />Thanks, GiselleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8924427017159384100.post-24784681486477065592011-02-19T04:48:55.514-08:002011-02-19T04:48:55.514-08:00I read anything to do with endo everyday from goog...I read anything to do with endo everyday from google news. I was pleased to find your article. Sadly enough it seems people do not care about this disease because males do not suffer from it. Once infertility comes into play, then people care a little bit because of breeding. But it seems that us women are left to suffer because we are not as important. I've suffered with many surgeries, awful treatment plans and like you hemoraging on a street corner. Nothing really works. Why doesn't anyone take care of a disease that we only refer to as cancer when it kills you? Thanks Dixie Carter. <br />I wish you health and strength.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8924427017159384100.post-30603462130819475262011-02-18T22:35:51.221-08:002011-02-18T22:35:51.221-08:00Just read the many moving comments about this arti...Just read the many moving comments about this article on the other posts on End Endo BC - thanks to the Georgia Straight and Gail Johnson for bringing attention to this painful and misunderstood illnessAnonymousnoreply@blogger.com