Sunday, October 23, 2011

Confusing, Frustrating, disappointing!

Today is my wonderful and amazing boyfriend's birthday. I planned a nice lunch with his friends and got him a huge cake and some sparkling wine. It was a wonderful day, even though the day before I had an attack after having the worst service at Whole Foods. I ordered a cake a week in advance so it would be ready the day before and all I would have to do is be in and out. Lately, getting in and out is about all I can handle. I arrive and they charge me for a small instead of a large cake which I didn't realize.

After I paid they the tell me to go back in line and pay more, so I wait again. While in line I am looking at the paper which has the wording for the cake and they had spelt his name wrong to. It was a simple name and I told them five times on the phone the correct spelling.

So now they have to fix the cake. Maybe for someone else this delay would mean nothing but to a sick person like me it was exhausting. No one even appologized until I found myself at customer service complaining; they did nothing to compensate me for their mistakes. It seemed like forever and a Friday at  Whole Foods at 4 pm is literaly a nightmare! I kindly told the man what happened. He said sorry I will look into it and sent me on my way. I stood there looking at him, getting more upset due to the stress of even just planning any sort of event I began to bleed profusely - through my pants and so embarassed I am forced to run to the car.

Today is my boyfriend's actual birthday. After all these events I am now too tired to even accompany him out on the town with his friends. I feel terrible. I feel like I am letting him down. I worry what will his friends think? They are still just getting to know me.

I know he completely understands because he is a great and wonderful man who has seen what endo can do to me but most people have not. I just want to be out there with him but I cannot. This is sad.

I am 26 years old and cannot go out on the town with my boyfriend for his birthday because my body will not allow me. I so desperately want to be there with him, instead I am lying in our bed cramping, bleeding and crying from the pain. And then the disapointment that I am not normal and endo wins again.

What a life sentence. I never get a day off and I can'teven particapate in normal activities. I feel like I am a prisoner in my own body. I just so want to be there with him!

Erin Ross Coward


  1. I read your article in the Georgia Strait. I suffered for many years from endometriosis. After many rounds of various medications, I finally had laser laparoscopy (spelling?) at Stanford Medical Center in Palo Alto, California. The procedure was performed by a physician named Arnold Kresch who, I understand, has since died. The laser surgery ended my many, many years of misery. I wish you the best. Don't give up.

  2. Thanks for the support. I have just tried a new hormonal treatment just approved in Canada this fall but the side effects were so severe - I am now back to square one....

  3. Hi,
    I have endo too, surgery with that dr., drugs, hormonal treatment...,it doesn't work, the endo always comes back. I tried a diet and its the only thing that makes me feel much better. I'm very surprise nobody talk about food as a solution. Its hard because its wheat free, lactose free... but I can feel the difference after just a few days, see Endo Diet @